June 2, 2015

Update on Luke and the whirl wind of May

I first want to say thank you so much for the many encouraging messages you sent me after my last post.  Seems like it touched many of you in different ways.

Well, today is Tuesday and one week from today my baby girl will be in the OR.  Seems unreal that the day is so near.  I just can't wait until we can all be home together again and have the surgery behind us.

May was a whirlwind of doctors appointments but also lots of good times attending graduation parties with friends and family. My hubby and I even squeezed in a date to see Phantom of the Opera, which we loved and my little man cub Luke turned 4 years old!  My sister made me laugh when she told me she kept telling everyone he was two lol!  Guess it makes two of us that still think he is a baby!

Some of you have asked how Luke has been doing and I am happy to report he is doing well.  No more scary episodes! He was a little pale and weak for a couple of days but he regained his color and energy quickly.  Once I saw him karate chopping around the house I began to feel better.  He had his appointment with the hepatologist last week   It worked out nice because Alexa also had a quick test to get done at the heart clinic (although they made her cry some big crocodile tears, broke my heart).

His appointment was first, it felt so strange walking into a new clinic, with new doctors and nurses and a whole new set of issues I knew nothing about.  Felt really vulnerable as opposed to the way I walk into the heart clinic where everything is familiar and I know the lingo.  After reviewing all his information the doctor said she did not see much reason for concern because although his liver is a bit large it still falls within the higher end of normal so still within normal range and that could have been from the angle the image was taken etc.  Through physical exam she said it felt fine to her and considering his original labs were good and he has no symptoms that would signal a problem, she does 'not want to go fishing for problems when she believes there is none'.  She does however, want us to keep on eye on it, make sure peds checks his liver routinely at visits and maybe do another scan some time in the future to monitor it. I felt relieved to hear this as it is one less thing to worry about right now.  I had been giving him and Alexa Milk Thistle at the recommendation of their naturopath and she said I could discontinue, but I may still give it periodically.  So very grateful we got out of there pretty unscathed.  I told her I had cried myself a river in worry and she said that ER docs just being cautious but as long as he is good then it's all good.  

Also have to say, proud of my Yazzy girl that one student of the month at her school! Way to go! Proud of you baby!  She is battling a cold right now, so I am anxious she is better before we leave for surgery and that she doesn't get the rest of us sick.  The saga continues.  I have much more to say but will leave it for another post.  

In summary, May was a whirlwind of crazy mixed thankfully, with plenty of good times.

1 comment:

  1. Great news on Luke. I'm so sorry you are having to face surgery again. Praying for a smooth surgery and recovery. Hoping everyone stays well till then.You are all in our prayers. One day this will be a thing of the past and all our babies can be running freely. What a joy that will be. Rev 21:3,4 Love of hugs.


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