November 24, 2009

Mini Meltdown


So last night it hit me. As I watched Alexa play and walk around the house with a huge smile on her face. And my home was filled with the playful banter of children and giggles. My heart was just so happy and content for our seemingly happy little ordinary life. But as soon as I felt that joy begin to swell my heart, I was stabbed with the realization of what the near future holds for my precious little daughter, open heart surgery. This surgery looms in our horizon like an ugly dreaded storm. She holds no fault in needing to face such a grave surgery. She did not choose this disease. Unfortunately this disease chose her, my innocent, playful, jovial, always smiling, easy going Alexa. I was happily sitting on the floor playing with her, when I suddenly collapsed to the floor in tears. My sweet doll, how I wish to take this from you. How I wish to be powerful enough to change your fate. Alexa reached for me as I lay on the ground and so I lifted my face and she saw me in tears, she looked intently into my eyes, as I see it is the first time she notices me crying. She tracked my tears with her finger down my cheek. Then she leaned into me and gave me a sloppy kiss and then hug. She knew I was hurt. And as much as I don't like her to see me that way, it felt good knowing that she cared and tried to make me better. I only hope I can do the same for her when the time comes.


November 22, 2009

Blogger Award and future update

Just want to say a quick thanks to Stefenie from When Life Hands You a Broken Heart Blog for awarding me with the Heartfelt Blogger Award! The Heartfelt Blogger Award is awarded to the blogs that make us feel all comfy or warm inside when we read them. Stefenie's son also shares a very similar diagnosis as Alexa so I really love keeping up with her family.




Here are the rules for this award...


1) Display the award logo
2) Nominate up to 9 blogs that make you feel comfy or warm inside
3) Link to your Nominees and leave a comment on their blog telling them about the award.
4) Link to the person whom you received the award


There are so many blogs that I enjoy reading that are in my heart friends list and/or that I follow. I don't like playing favorites but in the spirit of sharing some amazing blogs with you I will share just a few with you (listed in random order).

1 ~
Living for Eden, for the beautiful strength, testimony and will to live of a father living for his daughter Eden, after battling a life time of CHD and ultimately a heart transplant.
2 ~ The Duncans, for Melissa's strength and honesty in writing about the loss of her precious son Caleb to CHD and coping with life after.
3 ~ The Nie Nie Dialogues, for Stephanie's celebration of motherhood, womanhood and strength to go on after surviving a tragic place accident that changed her life forever.
4 ~ The Kurz Family, for Josie's love and devotion to her two precious little girls, one also battling Alexa's same CHD.
5 ~ Moments With Moriah, for this amazing little girl who after nearly two years in the hospital has yet to know what home looks like and has endured more than any child I know and is always smiling and her amazing parents enduring hope.
6 ~ Lauren's Heart, for this special, strong and intelligent young woman who tells her story of growing up with CHD and her insight into personally living with this disease.
7 ~ CJane Enjoy It, for this momma sharing her quirky sense of humor of life and mothering and growing up in a large family in a home with four seasons.
Okay it's 1 am so I really have to stop now. So many inspire me to keep moving forward through joys and pains losses and gains. I am glad that my blog does the same for some of you or at least Stefenie. Thanks again. ;)
 an update a little later.
Alexa had a cardiology appointment last Friday November 20th, so I will post

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